This July I am taking part in the GOGS Llanrwst Triathlon Sprint for Ruben's Fund which was set up by a mum who lost her 3 month old son due to Dilated Cardiomyopathy.

So why a triathlon? Since retiring I wanted to [Ali to input........ 28 years ago I lost my son Adam, and I feel a strong connection to this charity's aim].

This fund was set up by Ruben's family with the aim of raising £200,000 to enable the team at Royal Brompton & Harefield Hospital to set up a dedicated research project, which will provide valuable knowledge into genetic cardiomyopathy, which effects 1 in 100,000 babies, to better treat and manage this condition.

As most paediatric cardiomyopathy remains genetically unexplained, there is an urgent need to better understand genetic susceptibility and underlying disease mechanisms. To help avoid situation’s that Ruben’s family found themselves in.

Anything you can contribute to help would be greatly appreciated, thanks!

Alison Avies Jones